Getting diagnosed with a chronic illness is a very big change. It feels overwhelming, and scary, but also validating that you understand where your symptoms come from.
When I was getting diagnosed with postural orthostatic tachycardia syndrome (POTS) I was in denial it could be something that involves my heart. My primary complaint was pain and fatigue, I didn't notice anything that would involve a high heart rate. I was getting test after test trying to find the answers and my doctor said "well, what's the harm, let's just do the test", so we did. I went in on a "bad" day where I wasn't feeling well. My clinic had an acute paramedic in office who would do tests such as the standing test. To be diagnosed with POTS, you stand for 10 minutes, getting heart rate and blood pressure taken in time increments. To be diagnosed, there needs to be a heart rate increase of more than 30 beats per minute. When I got this test done, I had an increase of 60 beats per minute, as in we started at 80 and when up to 140 beats per minute just from standing. When we were done the test, my legs were purple, my face was pale and the acute paramedic was genuinely worried I would pass out but this was just normal for me. I hadn't realized I was living with a condition because I would explain the symptoms on other things. I wrote off heart palpitations and chest pain as anxiety because I've had it my whole life. I said my inability to stand was because I was weak from the pain and my health just deteriorated because of being less active. I said my temperature intolerance was just "my body hating me". Yet it was all explainable once I got the diagnosis. I could stop blaming my body because there was a reason why it was doing these things, I just had to accept my diagnosis.
Here are some examples, thoughts, and tips to help you on your journey of acceptance:
1. Embrace your emotions
It's normal to experience a range of emotions when living with a chronic health condition. Allow yourself to feel and acknowledge these emotions, whether it's frustration, sadness, or even anger. By embracing your emotions, you can begin to process them and find ways to cope.
2. Find your support system
Surround yourself with people who understand and support you. Connect with others who are going through similar experiences by joining support groups or through online communities such as on instagram. Having a support system can provide a sense of belonging and help you feel less alone.
3. Practice self-care
Taking care of yourself is crucial when living with a chronic health condition. Prioritize self-care activities that bring you joy and relaxation, whether it's reading a book, practicing mindfulness, or finding in a hobby. Remember, self-care is not selfish, but rather a necessary part of your well-being.
4. Educate yourself
Knowledge is power. Take the time to educate yourself about your condition, treatment options, and resources available to you. While you don't want to fall down the Dr. Google rabbit hole, you do want to be informed which can help you make empowered decisions about your health and advocate for yourself.
5. Set realistic goals
Living with a chronic health condition may require adjustments to your goals and expectations. Instead of focusing on what you can't do, shift your mindset towards what you can do. Set realistic goals that align with your abilities and celebrate your achievements, no matter how big or small they may seem.
At one point in my journey, if I could get out of bed and get dressed in the morning, that was a win for me! To my previously healthy self, that would be just a small thing I wouldn't have even considered it a "goal" but to myself now, I get to be thankful for every win I can get in a day.
6. Practice gratitude
Cultivating a sense of gratitude can help shift your perspective and find joy in the present moment. Take time each day to reflect on the things you are grateful for, whether it's the support of loved ones, moments of peace, or the strength you've gained throughout your day.
This is the one I struggle with the most. Whether it is getting in the routine of doing it before bed or trying to think of something without feeling basic or repetitive. Something I found to be helpful is to remember no one will see this, so it doesn't have to be an "impressive" gratitude entry. I also found that once you get the big ones out of the way like family, friends, food, house, and pets out of the way, you start digging deeper and reflecting on your day. Whether you were thankful for the person who held the door open for you, or for the person at Starbucks who made your drink taste really good, you can start being grateful for the little things too.
Remember, acceptance is not about giving up or resigning yourself to your condition. It's about acknowledging your reality, finding ways to adapt, and embracing life in a new way.
As you continue on your journey of acceptance, know that you are not alone. It is okay to feel your feelings, reach out for support, practice self-care, educate yourself, set realistic goals and notice moments of gratitude. Embrace the moments of hope and resilience along the way. Together, we can navigate the path of living with a chronic illness and find joy in the midst of it all.
Photo description: A grey doctor clinic's bed and pillow, covered in the paper sheet with the manual blood pressure cuff and pressure meter hanging on the wall.
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